About CRPS > Related
Sites
Additional CRPS-related Websites
Raising Awareness and General Information
Youth with CRPS
Research
Support and Chat Groups
Additional Non-CRPS-related Websites
Travel
- AirLifeLine is a national nonprofit charitable organization of over
1,500 private pilots who fly ambulatory patients who cannot
afford the cost of travel to medical facilities for diagnosis
and treatment.
- Mercy
Medical Airlift Charitable Air Transportation is a nonprofit
organization dedicated to providing charitable air transportation
for patients in need.
- MedicAlert provides identification and information for emergencies.
Prescription Drugs and Other Patient Assistance Programs
- Directory
of Prescription Drug Patient Assistance Programs provides
the contact information on pharmaceutical companies that
provide prescription medicines free of charge to physicians
(also available in PDF format).
- Disabled Dealer Magazine specializes in bringing products and services to the elderly and disabled community in one simple and informative publication. Each issue of Disabled Dealer Magazine also features several articles and stories on mobility assistance equipment and home medical supplies and services, the latest medical reports, new government programs and federal benefits for the disabled, and listings for events/conferences, support groups and sporting events.
- RXList-The
Internet Drug Index This site will help you research
medications and link you to other helpful sites.
- The Wheelchair
Foundation is a nonprofit organization leading an international
effort to create awareness of the needs and abilities of
people with physical disabilities, to promote the joy of
giving, create global friendship, and to deliver a wheelchair
to every child, teen and adult in the world who needs one,
but cannot afford one.
- Zero Unintentional
Deaths is a campaign developed to educate physicians,
people who suffer chronic pain, and the community in general
about the serious issue of unintentional overdose deaths
relating to methadone and other prescription medications.
Social Security and Workers Compensation
- AllSup, Inc. is a nationwide Social Security Disability Insurance benefits provider with a 97% success rate. Allsup is a great resource for disabled people, and helps make receiving their SSDI benefits easier.
- National
Organization of Social Security Claimant's Representative
(NOSSCR) provides representation and advocacy on behalf
of people who are applying for Social Security and Supplemental
Security.
- AFL/CIO
Web Site contains an excellent section on worker's compensation:
bimonthly newsletter, new court cases of interest to injured
workers, and related links.
- All
50 States and DC's Home Pages and Workers' Compensation
Agencies This site lists sites for worker's compensation
laws in all 50 states. Just click onto a state and you're
in!
- Find
a Reliable and Qualified Workers Compensation Lawyer iLawyer's unbiased, non-profit lawyer referral network can
assist you in finding an experienced workers compensation
attorney in New York, California, Texas, or Kentucky.
- Injured
Workers of America (IWA) works for fair, unbiased medical
evaluations when injured at work, timely treatment for t
injury, adequate pain control, and the preservation of patients
rights.
- Job
Accommodation Network (JAN) is an international consulting
service that provides information about job accommodations
and employability of people with disabilities. JAN also
provides information regarding the American with Disabilities
Act and can link you to 250 other helpful Internet sites.
- Workers
Comp Rx is a pharmacy service for injured workers with
open claims. It provides injured workers medications when
they need them without any out-of-pocket costs.
Legal
Pain Education
- Central
Pain Syndrome Alliance
- Commission on Accreditation
of Rehabilitation Facilities is an independent, not
for profit organization that reviews and grants accreditation
services as requested by a facility.
- Diabetic
Neuropathy Information
- NINDS
Fact Sheet on CRPS
- The
Mayday Pain Project goal is to increase awareness and
provide objective information concerning the treatment of
pain.
- National Center of Complimentary
and Alterative Medicine (NCCAM)
- The National Fibromyalgia
Association develops and executes programs dedicated
to improving the quality of life for people with fibromyalgia.
- The
National Foundation for the Treatment of Pain provides
support for people suffering from intractable pain, their
families, friends, and the physicians who treat them. It
is also a resource for medical professionals and attorneys
concerned with legal issues regarding the legitimate treatment
of pain.
- National
Institute of Neurological Disorders and Stroke Home Page (NINDS) has a listing of clinical trials for neuropathic
pain and good information about CRPS.
- National
Institutes of Health (NIH) Pain Consortium coordinates
activities and programs related to pain research.
- National
Multiple Sclerosis Society
- National
Organization for Rare Disorders (NORD) is a clearinghouse
for information concerning disorders affecting fewer than
200,000 individuals worldwide. NORD also sponsors an on-line
used medical equipment exchange and publishes two newsletters:
Orphan Disease Update and NORD Online.
- Office
of Rare Diseases has information on more than 6,000
rare diseases.
- Pain:
Hope Through Research
- Pain.Com is an excellent resource for both professionals and consumers.
It has a special "Ask the Doctor" section that contains
frequently asked questions and answers about RSD's diagnosis,
treatment, and management.
- Pain in infants, children, and adolescents: Resources for parents and professionals
- Painlaw.org is a public resource of general information on the legal
aspects of pain management and end-of-life care in the United
States
- Pain
and Sleep Apnea. Most patients with sleep apnea do not
know they have the disorder, but it should be ruled out
before patients are given paid medications that can affect
their respiratory drive or relax their muscles.
- Thermology:
the study of heat using infrared thermal imaging. This
is a comprehensive commercial site, maintained by Ashwin
Systems International, Inc., a manufacturer of infrared
thermal imaging machines.
Healthcare
- Searching for a pain specialist or pain clinic in your area?
The Dannemiller Foundation has compiled for your use a list of hundreds of pain specialists and pain clinics from all over the globe.
- Foundation
for Health Coverage Education: Coverage for all through
education
- Health
Assistance Partnership provides help an resources in
the areas of Medicaid, Medicare, private insurance, and
for those who are unisured.
- The
Health Care Problems Archive gathers accounts of problems
with the US health care system from people involved in all
facets of the system. The accounts are made available to
all who are developing solutions to health care system problems.
- Health
Insurance Portability and Accountaility Act (HIPAA). This interactive tool, provided by the Federal Government,
helps answer your questions about health coverage and your
rights and protections under the HIPAA.
If you have questions on getting and continuing health coverage
during events such as losing or changing jobs, pregnancy,
moving, or divorce, you can get answers here. If you are
an employer, you can get answers to common questions about
getting and renewing group health coverage for your employees.
- The
Patient Advocate Foundation is a national non-profit
organization that seeks to safeguard patients through effective
mediation assuring access to care, maintenance of employment
and preservation of their financial stability.
Pain Academies, Associations, and Societies
- American
Academy of Physical Medical and Rehabilitation serves
the needs of practicing physical medicine and rehabilitation
physicians.
- American
Academy of Pain Management (AAPM) is the 'largest multidisciplinary
pain society and largest physician-based pain society in
the United States.' Individuals with CRPS can locate
a pain-management center on this Internet site by entering
their Zip Code.
- American
Chronic Pain Association (ACPA), a non-profit organization
with more than 800 chapters, provides a support system through
group activities to those suffering chronic pain. ACPA publishes
guidelines to help select a pain unit and a quarterly newsletter.
- American
Pain Foundation (APF) is a patient information, education
and advocacy organization, helping those who suffer from
pain.
- American
Pain Society (APS) is a "multidisciplinary educational
and scientific organization dedicated to serving people
in pain." APS publishes a directory of its members.
APS will mail a free inquiry packet that contains treatment
referrals for your state or you may search for a nearby
pain facility online.
- International
Association For The Study Of Pain (IASP) is an international,
multidisciplinary, non-profit professional association dedicated
to furthering research on pain and improving the care of
patients with pain.
Medical Academies, Associations, and Societies
Research
- The
Computer Retrieval of Information on Scientific Projects (CRISP) is a searchable database that contains information
regarding federally-funded biomedical research projects
conducted at universities, hospitals, and other research
institutions. This site allows users to research scientific
concepts, emerging trends and techniques, or identify specific
projects and/or investigators.
- Internet
Grateful MED v2.6.2 is a product of the United States
National Library of Medicine. The program offers assisted
searching in MEDLINE and other MEDLARS databases created
by the National Library of Medicine.
© 2008 RSDSA | http://rsds.org/2/related_sites/