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Beyond Pain—Some hope for healing

Eduardo Pace, 27, turned the key in the door to the pizza restaurant in West Windsor, N.J., where he worked as a chef, and was greeted by the scent of pine oil rising from freshly mopped floors. It was only 9 a.m. on an overcast morning in June, but already the kitchen was hot.

After gathering the ingredients for a fresh batch of dough, Pace put them into a giant machine to mix together. He then prepared several pizzas for early bird customers who might stop by. Soon, the pleasing aroma of the pizzas baking in the ovens filled the kitchen, so Pace turned his attention again to the dough. Now mixed, it was ready to be cut and rolled. Alone, he lifted the dough - all 80 pounds of it - placing it on the table nearby.

He remembers the snap in his right wrist as his ligaments ripped apart.

He remembers a searing pain that shot through his arm like an electric shock.

He remembers the doctor in the emergency room who dismissed his complaints, sending him back to work.

This is a story about one man's traumatic injury, the devastating health consequences, and finally, a treatment called Hyperbaric Oxygenation Therapy (HBOT) that is beginning to heal.

"My injury happened 15 years ago," says Pace. "I had gone to a local emergency medical center where I was examined but no X-rays were taken. The attending doctor thought I was complaining too much. He assumed I was looking for time off from work. He said nothing was wrong and sent me back to the restaurant."

Despite a year's delay, Pace's injury to his wrist was finally diagnosed and treated. He had an operation during which nine pins were put into his arm to reattach the ligaments. By this time, however, edema had set in, so the tissues in his hand and arm were inflamed and swollen. Soon afterwards, Reflex Sympathetic Dystrophy (RSD), which had begun spreading, was diagnosed. This little known condition that causes excruciating pain at even the slightest touch, involves the nerves, skin, muscles, bones, and blood vessels. Affecting the sympathetic nervous system, rather than the central nervous system, it is especially difficult to treat.

"It feels as though my arm and hand are in a bat of burning oil with a knife-driving pain simultaneous to the burning pain," says Pace. "On top of all of that, there is the feeling as if the limb was being clamped shut."

From this point forward, Pace had great doctors. Because his was a work related injury, however, there were considerable legal issues that prolonged the necessary care. The RSD continued to spread, affecting his legs by 1995. He tried to manage with a quad cane for a while, but eventually needed a wheelchair.

The years since his injury are a blur of doctors and medical procedures and medications, none of which gave Pace relief. Then one day, a doctor suggested HBOT.

The term, oxygenation therapy, refers to inhaling 100 percent oxygen instead of 21 percent oxygen, which is the ordinary level of oxygen in the air we breathe. The word, hyperbaric, relates to pressures higher than normal. With HBOT, patients enter a small bed-size chamber, where they inhale 100 percent oxygen at higher than normal atmospheric pressure. The therapy has a remarkable history of improving the function of many individuals.

According to neurologist Allan Spiegel, who treats patients with HBOT, "the saturation of blood and tissue with oxygen increases 10 to 20 times when you are in the chamber, compared with when you are not in the chamber. Essentially, you are super saturating tissues deprived of oxygen, because of the swelling of a limb."

With hope for some relief finally in sight, Pace searched for a medical facility that provides HBOT. Unfortunately, the hospitals closest to his home and even those in Philadelphia refused to take him because RSD is considered "off-list" of the therapies they can treat with HBOT.

At last, he identified the Robert M. Lombard Medical Center - a free-standing clinic in Columbia, PA, three hours from home. The staff in Columbia welcomed him as a patient. Ever grateful, Pace made reservations in a nearby motel and moved in, so he could go for daily treatments. It was 2003.

"In 13 years, this was the first thing that showed any effect," he says. "It took about a month, but there were very small changes that meant a lot to me. It had a dramatic impact on the edema in particular."

Pace says he sits in a Vickers chamber, which looks like a one-man submarine. It has a huge bubble where his head is, so he can look around and watch TV or a movie if he wants. As he is "diving" - a term used by patients as the chamber is pressurized to a different undersea atmospheric pressure -he chews gum or licks a lollipop to keep his ears from popping. Once he is at the right pressure level, his ears are fine, he says. There is no difference from being outside the chamber.

Sitting in the chamber is very painful, of course, because his legs are touching the bed and his arm and hand are resting in his lap. Otherwise, he has no side effects. On rare occasions, however, he has struggled a bit with claustrophobia. He just closes his eyes and visualizes himself elsewhere. It helps a great deal.

"When I first started coming for this therapy, my hand was swollen to 26 inches around (67 centimeters)," he says. "After months of HBOT it was 11 inches (29 centimeters). The results were phenomenal. There was not a drastic change in pain, but a little bit means a whole lot to someone in my shoes."

Spiegel and other therapists find that approximately 20 to 60 daily treatments can give RSD patients huge relief. Because of the delay in his treatment, however, Pace's condition had worsened so badly that he continued the therapy for about a year. He says he was doing extremely well and making lots of progress until he had a fall and had to stop treatments for some time. Depression set in and his condition regressed. He started treatments again in July 2005.

"I am finally on the right track once again and seeing positive signs all around. My legs have responded very well. There is almost no drainage. The edema is down considerably.

"I absolutely recommend this therapy to others," Pace says.

"It has made a dramatic difference in my life."

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