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| Elise was a gymnast, dancer, and sports aerobics competitor when she was diagnosed with CRPS in November 2005, following ankle surgery. She had a goal and was determined to reach it. She has currently reached the Australian Finals. |
Jessika lives in Trinidad & Tobago, West Indies. This photo
shows her kneeboarding for the first time after treatment
for CRPS.
Jessika believes in herself and her motto is
"Live life… uninterrupted!" |
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| Yvonne Larity's goal was
to be on the Olympic track team. She was diagnosed with
CRPS in October 2005 and has had to alter her goals.
She now rides competitively. |
Ashley Mahoney was diagnosed with CRPS in her sophmore year of college.
She changed schools, and recently graduated. |
Recent News
RSD in Motion's 'Walk-n-Roll for RSD'
Curing Chronic Pain In Kids
New Waltham Center Tackles Brain, Body Connection
First of its kind pediatric rehabilitation center offers hope to chronic pain sufferers
Publications and Resources
Pediatric CRPS Tri-Fold Brochure
This brochure offers information and resources for the family and friends of youth with CRPS and those who want to help.
Pediatric CRPS Slide Kit (PDF)
Take Flight With Hope: Stories of Hope and Transformation
This brochure offers an array of patient stories, and as Executive Director Jim Broatch, MSW, writes "People make changes, they move forward, they live lives they never imagined they could or would. CRPS brings huge losses, but, as you will read, there are significant gains as well."
Single copies are available free for our members. Additional copies are available for $2 (members) and $3 (non-members).
CRPS and Sport Injuries: Prevention is the Name of the Game
Helping
Children/Youth With CRPS Succeed in School
This brochure is designed to help schools accommodate
the special needs of children with CRPS.
Stories Elise's Story
By Christine Robinson
Alissa's Story (Video)
Anna Brilliant's
Story
Testimony from the NJ CRPS Awareness/Education Bill Hearing Changing the Course of My Dreams
By Yvonne Larity Finding Other Ways to Give: Nicole Biller's Awareness Story Orange Ribbons Pinned
in Our Dreams
By Ashley Mahoney
Jessika's story: "Live
life …uninterrupted!"
By Laura Bortolusso-Welch, Trinidad & Tobago. W.I.
Kim Bosse's Essay from McGee March Madness 2008
Melanie's Story
Stephanie Lewis's Essay from McGee March Madness 2008 Surviving College with CRPS
By Ashley Mahoney
Parents
RSDParents Yahoo! Online Support Group
Random
Eruptions
By Randy Erickson
A father's thoughts on his daughter's
CRPS
RSD—A Parent's Perspective
What We Can Learn From Aya
Ravek
Your Child Is Diagnosed
With RSD
Articles
Management of Pediatric
Patients with Complex Regional Pain Syndrome
By Robert T. Wilder, MD, PhD
Too Young for Pain
from the Pittsburgh Post-Gazette, October 5, 2005
Websites (More Related Sites)
fightingagainstrsd is a website by teenagers who have CRPS.
RSD Hope Teens
An online support group for kids and teenagers suffering from reflex sympathetic dystrophy (RSD).
June 25, 2008
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