RSDSA :: welcome

Raising Awareness of Complex Regional Pain Syndrome since 1984.

Click here and include your name and postal address to order an information packet from RSDSA that includes:

Treating Complex Regional Pain Syndrome: A Guide for Therapy

Telltale Signs & Symptoms of CRPS

Order forms

RSDSA Review, our quarterly newsletter

An application to join RSDSA

If you are in crisis, please call 1-800-SUICIDE (800-784-2433) Click here or Contact The National Suicide Prevention Lifeline 800-273-TALK (888-628-9454 en Español)

The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) was founded in 1984 to promote public and professional awareness of Complex Regional Pain Syndrome (CRPS), formerly known as Reflex Sympathetic Dystrophy (RSD).

Our website is designed to give patients, family members, and healthcare professionals the most up-to-date information on treatment, legislation, support groups, research, fundraising, and patient stories. RSDSA does not accept advertising for this website.

The website is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.

Electronic Alerts

What are Electronic Alerts?
RSDSA will not sell, rent, or exchange your email address.

Electronic Alert Archive
Visit the archive and see what's been added this week!

2008 Walk for the Hope and Possibility of a Cure
Saturday, September 13, 2008
Cleary Lake Regional Park, Prior Lake, Minnesota
Sponsored by the Minnesota RSDS CRPS Coalition

Register Online!

Registration & Check-in: 10:00 am | Recognition & Announcements: 11:00 am
Walk Starts: 11:30 am | Picnic: 1:00 pm.......................

The 2007 MN RSDS CRPS Coalition’s Walk for a Cure at the Mall of America was a great success, and we hope that you will join us this year, to show support for those with CRPS and their loved ones. For more information, please see the flyer or visit the website.

The MN RSDS CRPS Coalition is coordinating "In Honor/In Memory" signs, to be placed along the Walk route. If you would like to sponsor a sign, please fill out the order form or contact the Coalition.

Recent News

Extension of Therapy Cap Exceptions
Medicare Improvements for Patients and Providers Act 2008

Slideshow of Team RSDSA at the 2008 NYC Achilles Walk for Hope & Possibility

CRPS as a Women's Health Concern: Needs Assessment

The Treatment of Breakthrough Pain (BTP) in People with Complex Regional Pain Syndrome (CRPS)

Illinois Advocacy Alert: RSDS Education/Awareness Bill

RSDSA is now accepting applications for the 2008 Rachel Tobias Young Investigator Award (PDF)

Pediatric CRPS Tri-Fold Brochure
This brochure offers information and resources for the family and friends of youth with CRPS and those who want to help.

Take Flight With Hope: Stories of Hope and Transformation
This brochure offers an array of patient stories, and as Executive Director Jim Broatch, MSW, writes "People make changes, they move forward, they live lives they never imagined they could or would. CRPS brings huge losses, but, as you will read, there are significant gains as well." Single copies are available free for our members. Additional copies are available for $2 (members) and $3 (non-members).
Take Flight With Hope T-Shirt Also Available!

Recent FDA Alerts

February 2008 Drug Safety Labeling Changes for 47 drugs now available on web

ETHEX Corporation Voluntarily Recalls Specific Lots of 30 mg. and 60 mg. Morphine Sulfate Extended Release Tablets Due to the Potential for Oversized Tablets NDC #58177-320-04 & 58177-330-04 Lot Numbers listed below

Remicade, Enbrel, Humira and Cimzia
FDA Investigating Tumor Necrosis Factor Blockers And Cancer Risk In Children And Young Adults

Enbrel (etanercept) Prescribing Information Revised To Include A Boxed Warning Regarding The Risk Of Infection, Including Tuberculosis

FDA Approves Relistor for Opioid-Induced Constipation
Drug will help reduce effects of drugs like morphine on bowel function

Actavis Recalls Remaining Fentanyl Patches in the US as Precaution

Actavis Recalls Certain Fentanyl Patches in the US as Precaution

Fentanyl Painkiller Patches Recalled
Patches Containing the Prescription Painkiller Fentanyl Recalled Because of Flaw

Chattem Icy Hot Heat Therapy Products
Nationwide Recall Due To Reports of First, Second And Third Degree Burns

Medtronic SynchroMed EL Implantable Infusion Pump

Information on Suicidality and Antiepileptic Drugs

We are producing a DVD that will instruct physical and occupational therapists how to restore function in people with CRPS.

In Phoenix, Arizona, we will hold a two-day CME-accredited conference on diagnosis and treatment options for CRPS, for healthcare professionals and patients.

We participated in the Achilles Walks for Hope & Possibility in Cincinnati and New York City, as well as numerous walks and fundraising events across the country.

We were involved in getting the NJ CRPS Education and Research Program Act passed and signed into law, and are working to have awareness bills passed in other states.

For more Achievements, click here.

Updated July 23, 2008

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