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Raising Awareness of
Complex Regional Pain
Syndrome since 1984.



       
 

The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) was founded in 1984 to promote public and professional awareness of Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD).

Our website is designed to give patients, family members, and healthcare professionals the most up-to-date information on treatment, legislation, support groups, research, fundraising, and patient stories. RSDSA does not accept advertising for this website. Our website is funded by RSDSA membership revenue.

The website is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.

 


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Team RSDSA at the 2009 NYC Achilles Walk for Hope & Possibility
 
                 
   

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Take Flight with Hope with RSDSA

Take Flight with Hope Artwork | © 2006 Elizabeth McBride Nielsen

   

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Ask a person who has CRPS about their syndrome and 99% of the time they will tell you the exact date when their life changed. We encourage people to cope with this change in the most positive ways possible. There is hope. Research happens each day that will bring us closer to solving the puzzle of intractable chronic pain. We are constantly lifted by the inspiring stories of others who are winning the fight against chronic illnesses, or who are doing wonderful things despite their disabling pain and other maladies. People make changes, they move forward, they live lives they never imagined they could or would. CRPS brings huge losses, but there are significant gains as well.

Elizabeth McBride Nielsen discovered art, which grew from her own form of imagery therapy. "While therapists were encouraging me to make therapeutic use of my mind’s capacity for imagination, I taught myself to use that cerebral part of art as a distractive tool against pain," she says. Elizabeth’s art ability was a "piece of me that I didn’t know existed. If I had been in a position to be graded or I felt I had to perform, it wouldn’t work. Art for me was a safe way to express myself. I had to give myself permission to let the art be what it was, without expectations."

As Elizabeth says, "Take flight with hope." You never know where it will take you.

Click here to read our Stories of Hope

 
 
 

 

     

 

 
  © 2009 RSDSA | Please contact the webmaster with questions or comments about this site.  
Updated July 1, 2009
 
 
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