Alabama
There are currently no support groups in Alabama.
Check surrounding states for support groups: Florida, Georgia, Mississippi, Tennessee
Find an online support group here.
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Alaska
There are currently no support groups in Alaska.
Find an online support group here.
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Arizona
North Phoenix
New Group
Contact: Leslie Glassman,
Tel: 623.247.3746, les-mike@cox.net
Phoenix
RSD Care and Share Support Group of Phoenix
Meets 3rd Saturday, 1:00 pm
St. Joseph's Medical Center, 3rd Ave and Thomas,
Phoenix
Contact: Margie St. Pierre,
Tel: 602.843.2412, mjstpierre1@yahoo.com
Tucson
RSD Care and Share Support Group of Tucson
Meets 2nd Saturday, 3:00 pm
Masonic Lodge, 3959 East Mabel (near Alvernon & Speedway)
Contact: Pam Horton, 9139 E. Calle Diego, Tucson, AZ 85710
Tel: 520.731.8333, e-mail: tucsonrsd@yahoo.com ,
website: www.tucsonrsd.blogspot.com/
Yuma
James Newland would like to start a face-to-face support group in Yuma. If interested in attending, please e-mail James.
Contact: James Newland, jknewland@msn.com
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Arkansas
Batesville
New Group
Contact: Shelia Hall, sheliaann@rocketmail.com
Little Rock
Debbie, painstopshere@yahoo.com
Tel: 501-249-2209
Barbara 501-681-8970
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California
The Bay Area
http://www.facebook.com/#!/groups/179362672158251/
Cupertino
New Group
Contact: Brenda Eldridge, brendaeldridge@comcast.net (put CRPS in subject line)
Highland
Meets second Thursday of each month
Contact: Patti Rosario, pattierosario@sbcglobal.net (Rsd support Group - in subject line)
You can also visit their website here
Lancaster
Meets Wednesdays, 4:00 pm to 7:00 pm
Contact: Mary,
Tel: 661.723.5713
Roseville
Roseville RSD Support Group for Veterans
Contact: Sabino Deodanes
http://web.me.com/sabino11/Web.Me.com_sabino11_RSD/
Santa Rosa
RSD Hope, to connect RSD families together in the San Francisco North Bay.
Facilitated by a transitional life coach, Kaitlyn Stevens
Contact: pela75@gmail.com
Group for people with chronic pain including CRPS
Contact: Kaitlyn Stevens
707-494-6404
pela75@gmail.com
Southern California
http://www.facebook.com/#!/groups/RSD.CRPS.Southern.CA/
Templeton
CRPS/RSD Support Group
Rabobank Community Room
1025 Las Tablas
Templeton, CA 93465
1st Monday of every month from 5:30 to 6:30pm
Contact: Suzanne Miller
RSDSA Registration Number: 19439
Cell: 805.704.5970, E-mail: suzanne.miller@ymail.com
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Colorado
Englewood
Rocky Mountain CRPS/RSD
Contact: http://www.rmrsd.org
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Connecticut
Branford
Phone and e-mail only:
Contact: Barbara,
Tel: 203.481.7398, s21@snet.net
Barbara cannot return toll calls.
Brookfield/Danbury
US Pain Foundation, Inc.
Meets weekly
Contact: Paul Gileno,
Tel:1-800-910-2462
PO Box 2182, Shelton, CT 06484
uspainfoundation@gmail.com; www.uspainfoundation.org
Norwich
American Chronic Pain Association #664
Contact: Rita Ammons,
1 Pacemaker Ave.,
Norwich, CT 06360,
Tel: 860.822.1082, ritaammons@hotmail.com
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Delaware
State-wide
Phone Support Only
Contact: Gerry McLaughlin,
Tel: 302.504.0663
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District of Columbia
There are currently no support groups in the District of Columbia.
Check surrounding states for support groups: Delaware, Maryland, Virginia
Find an online support group here.
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Florida
Coral Springs
RSDExtremity
Meets Last Thursday,
6:30 pm to 7:30 pm
3100 Coral Hills Drive,
1st Floor, Conference Room A & B
Adjacent to Coral Springs Medical Center
(Call 954.344.3344 for directions)
Contact: Susan or Michelle, RSDExtremity@yahoo.com
Daytona
Northeast Coast of Florida RSD Support Group
Contact: Linda Cohn, Lindsay Heffron, or Janet Tedder,
Tel: 386.673.0871, leeorlinda@bellsouth.net
Jacksonville
North Florida RSD|CRPS Support Group
E-mail or Phone Support Only
Contact: Tanya Kee,
Tel: 904.268.2838, nfrsdsupport@aol.com
Lake City
New Group
Contact: Jessica Velez,
Tel: 386.344.5333, jvelezrsdsg@bellsouth.net
Lakeland
Phone and E-mail Support Only
Contact: Karen McManus,
Tel: 863.838.0223, polkrsdgroup@tampabay.rr.com
Miami Lakes
New Group
Contact: Maggie,
Tel: 305.502.9595, imaginemiami@yahoo.com
Orlando
Orlando RSDS/CRPS Support
If you live in the Greater Orlando are and are a CRPS patient and/or are a loved one, caregiver, friend of a patient, and would like to be involved with our group, or would just like to come on by and talk with us, drop us a line with your contact information.
Contact: Jason Bingham, Tel: 407.234.4243, orlando.rsds.crps.support@gmail.com
Palmetto
New Group
Contact: Lana Baus
Tel: 941.592.1968, E-mail: lb113068@gmail.com, FaceBook: facebook.com/lana.lundebaus
Panama City
Contact: Carmen E. Everhart,
3919 Becora Ct.,
Panama City, FL 32405,
Tel: 850.265.3463, cever15741@yahoo.com
Pinellas County
New Group. RSD Support Group.
The group meets the second Saturday of each month at 10:30 am at the Pinellas Park Library.
Pinellas Park, Florida
Contact: Nancy, Tel:727-546-9319
Sanford
Contact: Jennifer
407-321-1169
nyirish2@aol.com
Jennifer is looking for someone to help coordinate the group.
Vero Beach
RSD Support Group of the Treasure Coast
Phone Support Only
Contact: Liz Radloff,
Tel: 772.778.2777
(10:00 am to 10:00 pm), Lizrsd1@comcast.net
Winter Haven
Contact: Barbara, rsdcareintl@aol.com
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Georgia
Atlanta
New Group
Contact: Lucille,
Tel: 770.252.4665, a80wife@aol.com
Rome
New Group
Contact: Felechia,
Tel: 678.685.4429, feliceshreewil2@msn.com
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Hawaii
Kailua-Kona
RSDS|CRPS Association of Hawaii RSDSA
Contact: Tina Mohr, LMT,
73-4787 Halolani St. Kailua-Kona, HI 96740,
Cell: 808.960.0918,
Fax: 808.325.0370, tina@protourhawaii.com
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Idaho
Contact: Gina Hyc 1936 North Sparkling Place, Meridian Idaho 84646.
Tel: 208-409-2433. Email: ginahyc@gmail.com
Facebook group CRPS +boise idaho
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Illinois
Elk Grove Village
Illinois RSDS Association
Meets 2nd Sunday,
2:00 pm to 4:00 pm
Conference Rooms 1 & 2,
Alexian Brothers Hospital,
800 Biesterfield Rd.
Contact: Edwina Schaeffer,
Tel: 630.665.0717, edwinaschaeffer@sbcglobal.net or
Tim Groark,
Tel: 773.582.8051, frogy3@msn.com
Hinsdale
Meets 3rd Sunday, 2:00 pm to 4:00 pm
Lincoln Room,
Adventist Hinsdale Hospital,
120 Oak Street,
Hinsdale, IL 60521
Contact: Edwina Schaeffer,
Tel: 630.665.0717, edwinaschaeffer@sbcglogal.net or
Tim Groark,
Tel: 773.582.8051, frogy3@msn.com
Hinsdale
Meeting for Children with RSD
Meets 1st Sunday, 2:00 pm to 4:00 pm
Adventist Hinsdale Hospital,
120 Oak Street,
Hinsdale, IL 60521
Contact: Edwina Schaeffer,
Tel: 630.665.0717, edwinaschaeffer@sbcglogal.net or
Tim Groark,
Tel: 773.582.8051, frogy3@msn.com
Rockford
Meets 2nd Monday of month,
10:00 am to 11:30 am
Swedish American Hospital, 4th Floor,
Rockford, Illinois
Contact: Beth Moore,
Tel: 815.247.8885, bethmoore35@hotmail.com
Round Lake
Pain Specialists of Greater Chicago
Contact: Joy Thornborough,
604 Nippersink Ave,
Round Lake 60073
Tel: 847.201.8957, joy2u4ever@yahoo.com, www.painchicago.com
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Indiana
Evansville
New Group
Contact: John Chivalier, Jr.,
Tel: 812.303.5788, j_chivalierjr@yahoo.com
Fort Wayne
Meetings and phone support.
Call for meeting information.
Contact: Mara,
Tel: 800.728.2425, askmara@gmail.com
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Iowa
Decorah
St. Benedict's Parish Offices. Please Call to Register.
Contact: Eva,
Tel: 563.380.6672, or Carol,
Tel: 563.380.7888
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Kansas
KC Metro Area
Entire Area
KC RSD/CRPS Support Group
Online, Phone, and Group Meetings.
Meets 1st and 3rd Tuesdays 7-9 PM
Contact: Lisa Coan,
Tel:816.326.7111
(10:00 am to 10:00 pm CST), lisakcoan@yahoo.com
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Kentucky
Burlington
Northern Kentucky RSD Chapter
Contact: Alyce F. Rowland, Northen Kentucky RSD Chapter, PO Box 667, Burlington, KY 41005; Tel: 859-586-6180 (If no answer, call 859-743-8204); lifewrsd@aol.com
Deane
Contact: Desta Slone,
PO Box 108,
Deane KY 41812
Tel: 606.447.2393, rsds@hotmail.com
Leitchfield
South Central KY RSD Support Group
Meets 1st Tuesday,
1:00 pm CT
Eriksen Chiropractic Center
508 Wm Thomason Bwy
Leitchfield, KY 42754
Contact: Carolyn Clemons,
345 Hopewell Rd.,
Caneyville, KY 42721
Tel: 270.879.4023, cpc345@windstream.net
Louisville
Contact: Carol Dever,
Tel: 502.314.2049, edever34@aol.com
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Louisiana
Monroe
New Group
Contact: Debbie, Tel: 318.387.9645, ducotedm@bellsouth.net
New Orleans/Kenner
Call Kim Gaudet
504-712-6928
e-mail: kbellawithrsd@yahoo.com
Trying to start a face-to-face group
Shreveport
New Group
Contact: Jerry Pond, Tel: 318.222.5573, jpond@bellsouth.net
Sunset
New Group
Available via telephone and and to chat monthly
Contact: Lisa Begnaud Courvelle, Cell:
337.290.5818
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Maine
Harrison
American RSDHope
Contact: Lynne Orsini or Karen Toner
Tel: 207.583.4589
www.rsdhope.org
Southern Maine
Chronic Pain Support Group
Meets 1st and 3rd Thursdays,
6:00 pm to 7:30 pm
The Pines,
10 Manor St.,
Old Orchard Beach, ME
Contact: Evelyn,
Tel: 207.937.5020, or Jane,
Tel: 207.934.4189, supportgroupinfo@gwi.net, www.painsupportgroup.org
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Maryland
Baltimore
E-mail support only
Contact: Nancy Carp, imnancee@verizon.net
State-wide
RSDS Support Group of Southern Maryland Hospital Ctr
Meetings
(call for dates)
Contact: Tony Powell,
Tel: 301.645.0786
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Massachusetts
Abington
Support Group for Children in Pain
For children
6-18 years of age and their families
Meets 1st Wednesday
United Church of Christ,
Abington (on Route 18)
Contact: Judy,
Tel: 781.871.8803 (9:00 am to 5:00 pm), hopenfaith4ever@aol.com
Arlington
Arlington Chapter of the American Chronic Pain Association
Meetings are free and open to anyone living with chronic pain.
Meets 2nd Friday,
11:00 am to 12:30 pm
Arlington Robbins (main) Library,
700 Mass Ave,
In the ground floor Community Room
Click here for a Meeting Schedule
Contact: Cindy Steinberg, leader@arlingtonacpa.org
Mansfield
Phone support (Call between 11:00 am and 5:00 pm)
Contact: Lisa Shea,
Tel: 508.339.6064, lisanashshea@yahoo.com
Weymouth
Meets 4th Tuesday,
5:00 to 7:00 pm
South Shore Hospital,
Center 2 Classroom
Contact:Carol Sansone,
Tel: 781.340.8352
Worcester
Phone support only
Contact: Mary La Bree,
Tel: 508.595.0207
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Michigan
Ann Arbor Area
RSD in Motion: Ann Arbor Area Support Group for Reflex Sympathetic Dystrophy and Complex Regional Pain Syndrome
Click here for complete information
Babysitting will be available during every support group meeting for the next few months! A sitter will be available, free of charge, please contact Jordan if you're interested with what night, how many, and their ages. A babysitter will not be at the group if no one contacts me with this need.
Contact: Jordan Keen, a2rsdcrps@gmail.com
Detroit
Southeastern Michigan CRPS
Meets last Friday,
6:00 pm to 8:00 pm
People Community Church,
8601 Woodward Ave
Contact: Jannie White,
Tel: 313.861.6791,
(1:00 pm to 6:00 pm), rsddetsupportgroup@sbcglobal.net
Grand Rapids
RSDS Support Group of Grand Rapids
Contact: Sherry and Cliff Mulder,
1259 Diamond NE,
Grand Rapids, MI 49505,
Tel: 616.364.4014
Jean Arp,
2446 Eden, SW,
Wyoming, MI 49509,
Tel: 616. 534.9281
Lake Superior
Ron is starting a new group and would love to connect with others nearby.
Contact: Ron Halsey,
Tel: 906.273.0527, mari.maverick@hotmail.com
Parchment
Parchment Community Library,
401 S Riverview Dr,
Parchment, MI 49004
Library
Tel: 269.343.7747
Contact: Colleen, Tel: 269.381.2283, colleen.westra@chartermi.net
Republic
Hands Helping Hands
Mail or Phone Support ONLY
Contact: Patti Truckey,
PO Box 680,
Republic MI 49879,
Tel: 906.376.8464, painiacs@yahoo.com
Sanford
RSD Group of Midland
Meets Thursdays,
9:00 am
Lanny's Restaurant
Contact: Paul and Marge Allen,
2826 W. Olsen Rd.,
Sanford, MI 48657-9630
Tel: 989.835.1766, Cocoapaul70@wmconnect.com
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Minnesota
Twin Cities South
Minnesota RSD Support Group
Meets 4th Saturday,
10:00 am to noon
Savage Public Library,
13090 Alabama Ave. S, Savage, MN
Open to people with CRPS and their caregivers
Contact: Bonnie Scherer,
Tel: 952.447.4930, Tel: 952.770.1770,
Cell: 952.457.7586,
rsdsmn@aol.com
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Mississippi
Brandon
Michele is starting a new support group. If interested in attending or helping, please e-mail her.
Contact: Michele, rsdcajunbabe@yahoo.com
South Haven
Midsouth RSDS Support Group
Phone Support
Contact: Linda Adams,
1096 W.E. Ross Parkway West,
South Haven, MS 38671,
Tel: 901 473 9559
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Missouri
Brandon
New Group
Contact: Michele Breaux-Poff, Tel: 601.918.5498, rsdcajunbabe@yahoo.com
KC Metro Area
Entire Area
KC RSD/CRPS Support Group
Online, Phone, and Group Meetings.
Group Meeting at St. Joseph Medical Center
I-435 and State Line Road
Community Center – Building "D"
Kansas City, MO
Meets 1st and 3rd Tuesday Evenings of the Month, 7-9 PM
Contact: Lisa Coan,
Tel: 816-326-7111
(10:00 am to 10:00 pm CST), kcchronicpain@yahoo.com
St. Louis
St. Louis Chronic Pain Support Group
We offer peer to peer and guest speaker meetings in the St. Louis area.
For more information, please visit our website www.stlpainsupport.com
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Montana
There are currently no support groups in Montana.
Check surrounding states for support groups: Idaho, North Dakota, South Dakota, Wyoming
Find an online support group here.
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Nebraska
Omaha
Mother of a young daughter with CRPS would like to help others successfully navigate the school & healthcare systems
Contact: Jackie Scott,
Tel: 402.213.8667, hrmanager@libertytaxne.com
Fremont
Fremont RSD Awareness
Meets 3rd Tuesday,
7:00 pm
Connie's House
If no one is home to answer, please leave a message.
Contact: Connie,
Tel: 402.753.3054,
Cell: 402.708.1694
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Nevada
Carson City
Chronic Pain Anonymous 12-Step Meeting
Chronic Pain Anonymous is a 12-Step fellowship of men and women who share their experience, strength and hope with each other so that they may solve their common problem and to help others recover from chronic pain and chronic illness. The only requirement for membership in CPA is a desire to recover from the emotional, physical, and spiritual debilitation of chronic pain and chronic illness and a willingness to help others to do the same.
Saturdays, 12:00 pm
BHS Carson Tahoe Regional Health Care, Building B
W Williams St at N Minnesota Rd
Carson City, NV 89702
Contact: Chuck, aaforeme@gmail.com
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New Hampshire
Manchester
Sundays, 4:30 pm
Meeting at Hall of Our Lady of the Cedars Church
140 Mitchell Street, (on the corner of Mitchell St and Calef Rd
Manchester NH 03103
Contact: Cora Ouellette, Tel: 603.703.7152, coraouellette@comcast.net
Spofford
New Group
Contact: Debbie Fisher,
Tel: 603.363.4569, dafisher@myfairpoint.net
State-wide
New Hampshire RSD Coalition
Phone support only
Contact: Doreen McCullough,
Tel: 603.656.9044, rav29@comcast.net
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New Jersey
Atlantic County
South Jersey Reflex Sympathetic Dystrophy Group
Atlantic County Library
Anyone with chronic pain is welcome to attend. I am also looking for volunteers. If you would like to help with the group, or for more information, please contact Meloney.
Contact: Meloney Hulse,
Tel: 609.625.4677, rsdangel15@aol.com
Barrington
Contact: Christine, Craftychris71@aol.com
Berlin
E-mail support only
Contact: Linda Sobolewski,
79 Roosevelt Blvd.,
Berlin, NJ 08009, rinebird@juno.com
Camden County
Meets Weekly
The Starting Point,
250 Highland Ave, Suite C,
Westmont, NJ
Tel: 856.869.5483,
Tel: 856.854.3155
Contact: Carylanne Tracy,
Tel: 856.869.5483, energycat9@yahoo.com
Hoboken
New Group.
Contact Kurt for details.
In the Hudson County / NYC area (One 7-minute subway ride from Manhattan, and there are ferries and cabs available)
Contact: Kurt Bond,
Tel: 973.568.8078, wipmm@optonline.net
Mt. Holly
RSD and Chronic Pain Support Group
Meets 3rd Wednesday,
7:00 pm
Virtua Hospital
Contact: Kathy Henson,
Tel: 609.268.1565
Mt. Laurel
RSD & Chronic Pain Support Group of Mt. Laurel
Meets 4th Tuesday, 7:00 pm
YMCA of Burlington County,
59 Centerton Rd., Mt. Laurel
Contact: Lisa Anne Vasey, Chairman,
Tel: 609.877.0213, lisav1@live.com
Paterson
RSD and You Group of Northern NJ, Inc.
Meets 4th Tuesday, 7:00 pm
St. Joseph's Hospital,
Barclay Room,
703 Main St, Paterson
Contact: Jaclyn Drake,
Tel: 201.704.0963, jaci81@optonline.net
Somerville
Living with RSDS, Inc.
Meets 1st Tuesday,
7:00 pm to 9:00 pm
Somerset Medical Center
The meeting is open to anyone with RSDS, family, friends, professionals, and others with chronic pain.
Contact: Sharon Weiner,
421 Courtyard Drive,
Hillsborough, NJ 08844
Tel: 908.575.RSDS,
Cell: 732.718.6978, slweiner@hotmail.com, livingwithrsds.com
Southern Ocean County
New Group
Robin Weiss is interested in starting an ongoing chronic pain support group. Please contact if interested.
Contact: Robin Weiss,
Tel: 609.978.7322, sedona.solice@yahoo.com
Southern New Jersey
Contact: http://southjerseyrsdcrps.ning.com/
Vernon
Contact: Tracey Vicedomini, Tel:
973.823.0936, tavcjv@emqarbmail.com
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New Mexico
Albuquerque and Las Cruces
Phone Support
Contact: Anna Montoya, RN,
Tel: 915.490.0084,
Tel: 505.503.1967, mother1959@gmail.com
Albuquerque
Phone support and quarterly meetings
Contact: Daniel Sampson,
Tel: 505.315.1639, eaglemaster89@hotmail.com
Los Alamos
Contact: Hazel Devreis,
119 Sherwood Blvd.,
Los Alamos, NM 87544,
Tel: 505.672.4112
Las Cruces
Marcella wants to start a support group! Contact Me: 575-312-0650. marselgui@yahoo.com
Santa Fe
Contact: Nancy Boal,
59 Sunlit Dr,
Santa Fe, NM 87505,
Tel: 505.983.3036
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New York
Bellmore
CRPS (RSD) Association of NY State
Contact: Marsha Rothstein-Laino, RN,
Tel: 516.221.7220, MarshaTheNurse@aol.com
Binghampton
Chronic Support Group
Meets 2nd and 4th Tuesday, 10:00 am to 11:30 am
Pain Center, 200 Front St, Vestal, NY
Contact: Corky Mott,
Tel: 607.655.2167, dancork@echoes.net
Buffalo
RSD/CRPS Support Group of Buffalo & WNY
Meets 4th Monday, 7:00 pm, and 2nd Thursday, 10:00 am
St. Paul's Lutheran Church,
4007 Main St. (1.5 blocks east of Eggert Rd),
Eggertsville, NY
Contact: Lynda,
Tel: 716.896.0771, rosieo335@yahoo.com
Claverack
New Group
Contact: Julie,
Tel: 518.851.2265, Magic41julie@yahoo.com
Manhattan
All meetings will be held on the first week of the month.
200 E 81st, Apt 8B, New York, NY, 10028 (b/w 2nd and 3rd Ave)
Please RSVP beforehand so that we have the proper accomodations
Contact: Laura, laurakbelt@gmail.com
Middletown
Meets 1st and 3rd Thursday
Contact: Susan Shafer,
Tel: 845.412.5356, eshafer@hvc.rr.com
PO Box 595, Otisville, NY 10963
St. Lawrence Valley
St. Lawrence Valley RSD Support Group
Phone Support only
Contact: Joanne M. Thompson, RN, Tel: 315.394.9744, jthomsom@twcny.rr.com
Suffolk County
Meets 1st Friday, 12:00 pm to 1:30 pm
Contact: Debbie Huberman,
Tel: 631.563.4856
Syracuse
New Group
Contact: Belinda,
Tel: 315.668.1608, bsomers@twcny.rr.com
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North Carolina
Hillsborough
Tarheel Telephone Support
Phone and mail support
Contact: Beth Robinson,
4100 New Sharon Church Rd.,
Hillsborough, NC 27278
Tel: 919.643.0383, tarheelgal1@embarqmail.com
Raleigh
Triangle Pain Support
This group is just beginning and the first meeting will be held on Wednesday February 9, 2011 at 7pm
Contact:Stacy Josephson, Tel: 919-559-0240; TrianglePS@Yahoo.com
A website www.TrianglePainSupport.org is being developed,
Salisbury
Meets 2nd Monday,
7:00 pm
Rowan Regional Medical Center
Contact: Donna,
Tel: 704.637.1021
Shiloh
Camden County
Support will be available via E-mail, Phone & Skype initially, no face-to-face meetings will be planned or scheduled until after the holiday season.
Contact: Samantha Adcock, Shiloh (Camden County) NC Tel: (252) 336-4462
E-mail: nccrpsrsd@gmail.com
Skype: Samantha.M.Adcock
Website: https://sites.google.com/site/nccrpsrsda/ (under development)
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North Dakota
Grand Forks
Contact: Shana, Tel:
701.741.0073, Pray4acure@gmail.com
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Ohio
Cincinnati
RSD Painfree
Meets 3rd Wednesday, 7:00 pm to 8:30 pm
Pleasant Ridge Recreation Center, The Blue Room, 5915 Ridge Rd., Cincinnati, Ohio 45213
Please show some love and support and let's make this happen for southwest Ohio. E-mail us if you would be interested in attending this group.
Contact: Cyndi and Patrick Ellis, RSD180painfree@gmail.com
Cuyahoga Falls
Meets 1st and 3rd Tuesdays
Auditorium #1, Falls General Hospital,
1900 23rd Street,
Cuyahoga Falls, OH
Contact: Circclerk@core.com
Cleveland
Phone and mail support
Contact: Georgette Bell, Tel: 216.481.2802
17909 Rosecliffe Rd.,
Cleveland, OH 44119
Rich Forentball,
17904 Brazil Rd.,
Cleveland, OH 44119
Columbus
Phone support
Thomas Stevens, 614-991-5848 (h), 661-852-8173 (cell)
Meets 2nd Tuesday, 1:00 pm to 3:00 pm
Handicapped parking is available.
Contact: Susan Diamond,
Tel: 614.805.4239, sediamond57@yahoo.com
Dayton and Vandalia
Phone support
Contact: Cindy Lowe, Tel: 937.898.1807
Lorain County
Online, e-mail, telephone, support group meetings, and snail mail support is offered.
Meets 4th Saturday.
Location varies each month.
Contact: Jessica Jacobs,
Tel: 440.822.7779, jljacobs1976@live.com
Milford
Phone Support 24/7
Contact: Mark Guy,
6041 Bridgehaven Dr,
Milford, Ohio 45150,
Tel: 513.831.1525,
Fax: 513.831.1625,
Cell: 513.659.3626, markguy@cinci.rr.com
Seville
New Support Group
Contact: Wendy High, PN, Tel: 330.931.9822, momoffatigue@yahoo.com
Warren/
Youngtown
Northeast RSD Support Organization
Meets 2nd and 4th Tuesday
Contact: Sandi Gabriele,
145 Terrace Drive,
Youngstown, OH 44512-1630
Tel: 330.788.1186, rsdohio1@zoominternet.net
Warren
Mahoning Valley
CRPS-RSDS Support Group
Meets 4th Tuesday,
6:30 pm to 8:00 pm
(Call for location or leave name and number we will call you right back.)
Contact: Cindi Horkey,
Tel: 330.469.5735 or 330.979.2359, CindiHorkey626@aol.com, cindihorkey@yahoo.com
or
Carol Polan, Tel: 330.609.5028
State-wide
RSD of North West Ohio
Contact: Anita Boyer, rsdsupport@accesstoledo.com
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Oklahoma
Oklahoma City
Oklahoma RSD/CRPS Support
Cimmaron Steak House. View website for more information.
Contact: Tracy Jones, jonestra@yahoo.com, oklahomarsdcrpssupport.com
Ponca City
Phone support only
Contact: Vonda Goad,
Tel: 918.738.4193
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Oregon
Grants Pass
Phone support
Contact: Nomeca Hartwell,
Grants Pass, OR 97526,
Tel: 541.474.3025
Portland
Phone support
Contact: Susanne Geraghty,
10719 S.W. 62nd Dr.,
Portland, OR 97219,
Tel: 503.293.0748
Portland
Phone support
Contact: Federico Aquino,
Tel:503.890.7959, tainomaya@msn.com
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Pennsylvania
Allentown
Northeastern PA RSDS Association
Meets Monthly
2845 Tilghman St., Allentown, PA 18104
Contact: Rae Lynne Tuffiash,
1040 Whitman St.,
Allentown, PA 18104
Tel: 610.395.0385, rsdmail@aol.com
Mrs. Daisy Bittner,
3638 E. Grant St.,
Slatington, PA 18080
Allentown-Lehigh Valley
Compassionate Friends Network for RSD/CRPS and Fibromyalgia
To join this free informational and educational network, please e-mail your first and last name, address, and telephone number. This is a confidential list which will only be used to contact you for meetings, events, and mailings.
If anyone would like to volunteer their time to be part of this network, please state in your e-mail.
Contact: Paula Thibault, lvrsd99@msn.com
Lehigh Valley RSD/CRPS Support group
Meet the first Saturday of Sept, Oct, Nov, Dec, March, April, May, and June, except on holiday weekends, then second Saturday of month. 1:30-3:30 pm.
Location: Sacred Heart Hospital In Allentown, Pa on Chew st. Between 4th and 5th.
Contact: Patti O'Donnell; lvrsdcrps@gmail.com
www.lvrsdsupport.com
Breinigsville
RSD/CRPS Support Network (by phone or will visit in your home)
Contact: Mrs. Peggy H. Grim,
8907 Breinig Run Cir.,
Breinigsville, PA 18031,
Tel: 610.530.7346, kellie1@ptd.net
rsdsupportnetwork.wordpress.com
Canton
Lycoming County RSD Support Group
Meets monthly
Divine Providence Hospital
(Private dining room basement)
Contact: A. J. Moyer,
2 Carlton St.,
Canton, PA 17724,
Tel: 570.673.5548, ajmoyer@sosbbs.com
Chambersburg
Phone and Mail support only
Contact: Paula Brown,
174 Highland Rd.,
North Guilford Hills,
Chambersburg, PA 17201,
Tel: 717.267.080
Delaware County
Kitty Cares
Meets monthly
Contact: Kitty,
Tel: 610.872-5631
Downingtown-Exton
Coming soon!
Contact: Sheree
610-857-5934
sdecarlo76@hotmail.com
Erie
Northwestern PA RSDS Assn. Support Group
Meets 2nd Tuesday,
6:00 pm to 8:00 pm
June, July, August, September, October, Dinner in November
Hamot Heart Institute,
Erie, PA
Contact: Tanya Schrader,
1316 West 22,
Erie, PA 16502,
Tel: 814.873.1564, northwesternrsdsa@yahoo.com
Green Castle
Contact: Cindy
717-262-8839
cindyburberner@aol.com
This group is just beginning in September 2011!
Honey Brook
Tri-County Chronic Pain Support Group
71 Wagon Way,
Honey Brook, PA
Meets 1st and 3rd Tuesday,
11:00 am to 1:00 pm
Honey Brook Presbyterian Church,
Rte. 322, Honey Brook, PA
Contact: Craig Collier,
Tel: 610.286.5728, or
Georgann Geedey,
Tel: 610.273.3163
Indiana
Meets 3rd
Thursday, 6:00 pm to 7:00 pm
Indiana Regional Medical Center, Indiana PA
Contact:
Jamie Brown, Tel: 724.599.8341, zoiemae@msn.com, or Mrs. N.J. King (hospital contact), Tel:
724.357.8135
Johnstown
Support Group for Complex Regional Pain Syndrome
John P. Murtha Neuroscience and Pain Institute,
1450 Scalp Ave,
Johnstown
For meeting times, please call Lori Murphy.
Contact: Vicki Walker,
Tel: 814.410.3301, csiwalker@atlanticbb.net, or Lori Murphy,
Tel: 814.269.5238
Lewisburg
Meets 1st Sunday, 3:00 pm
Evangelical Community Hospital
Contact: Jenny Dye,
Tel: 570.649.5061, jb_dye@yahoo.com
Monongahela
Monongahela Valley Support Group of Southwestern PA
Meets 2nd Tuesday
November to March: 11:00 am | April to October: 6:00 pm to 8:00 pm
Monongahela Valley Hospital,
Lombardi Conference/ Office Bldg.
Contact: Paulette Anderson,
Tel: 724.929.9492, panderson_15438@yahoo.com
N. Langhorn
This group is just starting
Contact Tess Shore
215-962-8876
tessshore@hotmail.com
Philadelphia
8-week therapy group for people with chronic pain (fee charged)
Contact: Sarah M. Whitman, MD,
18 Hilltop Road,
Philadelphia, PA 19118,
Tel: 267.265.2082
Scranton/Wilkes-Barre
Scranton/Wilkes-Barre PA Support group
Meets 3rd Saturday, 1:00 pm, in a conference room adjacent to the public cafeteria
Mercy Hospital: 746 Jefferson Avenue, Scranton, Pennsylvania
Group does not meet January and February. March meeting depends on the weather.
New members, family, and friends welcome.
Contact: Suzanne O'Toole,
Tel: 570.383.0578
(Call anytime), ScrantonRSDGroup@cs.com
Souderton
Montgomery County RSD Support Group
We will be starting meetings in late September-May.
Please contact for resources, support, and information.
Contact: Stephanie Maberry, Tel: 267.888.7559 (anytime), MontcoRSDsupport@verizon.net
State-wide
Pennsylvania RSD Coalition of Networks
Contact: Rae Lynne Tuffiash,
1040 Whitman St.,
Allentown, PA 18104,
Tel: 610.395.0385, rsdsmail@aol.com
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Rhode Island
Cumberland
RI RSD Foundation
Contact: Robert Hinton, 17 Lemieux Ave,
Cumberland, RI 02864; Tel: 401.533.2142 (cell); therhodeislandrsdfoundation@cox.net; http://www.rirsdfoundation.webs.com
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South Carolina
Greenville
South Carolina RSDS Association
Meets monthly
St. Francis Hospital Bernardine Center
Contact: Louise Plaster,
PO Box 72,
Simpsonville, SC 29681,
Tel: 864.967.7965,
Cell: 864.350.1342, scrsda1@aol.com, www.scrsda.org
Robert Schwartz, MD,
317 Francis Dr. #350,
Greenville, SC 29601,
Tel: 864.235.1834
Sumter
Contact: Donna Parker, Tel: 803.481.7521
Support group meeting:
3rd Saturday of month, starting Feb 18 at 1:30pm
3785 Blackberry Lane, Lot 7
Sumter, SC 29154
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South Dakota
Aberdeen
Nina is interested in starting an in-person or online support group
Contact: Nina, profslota@yahoo.com
Statewide
E-mail and Telephone Support
Contact: Nicole, http://www.raftsafloat.com/contact-us.html
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Tennessee
Dayton
Contact: Ann Rector Fine,
2198 Maplesprings Rd,
Dayton, TN 37321, myredprix@aol.com
Eastern Tennessee
Meeting at Christ Our Savior Lutheran Church
260 Wade Road
Loudon, TN
contact Suzy Holcomb
email: Suzy
Loudon
Reflex Sympathetic Dystrophy & Chronic Pain Support Group Of Eastern Tennessee
Meets 1st Wednesday,
6:00 pm
The Tellico Village Community Church,
130 Chota Center, Loudon, TN
Contact: Suzy Holcomb,
Tel: 865.657.9052,
email: Suzy
Middle Tennessee
Middle Tennessee Support Group RSD
Looking to develop a local group for discussions and support, for RSD patients, and well spouses
Contact: Peter and Cherrie Albertson, patchythreads@aol.com
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Texas
Arlington
Home is Your Range: a group for people suffering with both CRPS & MS
Contact: Connie Hughes,
Tel: 817.465.1585, rsdhelp@hotmail.com
Big Spring
New group
Contact: Krinkle and Debbie,
Tel: 432.935.6278, krinkle102@suddenlink.net, or
Lucy,
Tel: 432.264.1213, or Tina,
Tel: 432.267.1883
Dallas
New group
Contact: Antoine Beachum,
Tel: 214.714.5381
El Paso
Phone Support
Contact: Anna Montoya, RN,
7320 Duxbury Dr.,
El Paso, TX 79912,
Tel: 915.833.3668,
Fax: 915.845.3011, mother59@excite.com
Houston
This group is just beginning and is seeking individuals to assist in coordination.
If interested, please contact Denise.
Contact: Denise,
Tel: 936.336.0800, cleo1406@yahoo.com
Plano
Spinal Cord Stimulator and Chronic Pain Support Group
The meeting helps guide those who are considering getting an implant, or have an implant. The group's main focus is to support those living with chronic pain, with or without an implant.
Meets 2nd Monday,
11:00 am to 12:30 pm
The Medical Center of Plano,
15th & Coit Rd (Formal Dining Room in the cafeteria)
Contact: Dr. David Hanks,
Tel: 972.596.5960
Pamela Terrell,
Tel: 972.567.6406, deadwentgone2@verizon.net
Cindy McNeill,
Tel: 972.384.0777, goseaweed@wmconnect.com
Vickie Thoma,
Tel: 972.625.8140, rsd2crps@yahoo.com
San Antonio
New group
Contact: Contact: LuAnn
210-253-9119
thevanerpots@yahoo.com
Western Texas
Phone Support
Contact: Anna Montoya, RN,
PO Box 203,
Santa Teresa, NM 88008,
Tel: 915.490.0084,
Tel: 505.503.1967, montoya59@comcast.net, mother1959@hotmail.com
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Utah
There are currently no support groups in Utah.
Check surrounding states for support groups: Arizona, Colorado, Idaho, Nevada, New Mexico, Wyoming
Find an online support group here.
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Vermont
There are currently no support groups in Vermont.
Check surrounding states for support groups: Massachusetts, New Hampshire, New York
Find an online support group here.
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Virginia
Peninsula
Friends Living with RSD/CRPS
Contact Erin Dasher for more information on meeting dates and times
Tel: 757.634.9162, wmbg_rsdsupport@hotmail.com or erindasher@cox.net
Richmond
Virginia RSD Association
Summer: Twice monthly |
Winter: Once monthly
Sheltering Arms Hospital
Contact: Virginia Porter,
9770 Osborne Landing,
Richmond, VA 23231,
Tel: 804.795.5343, rsdinva@aol.com
Virginia Beach
Meets 3rd Tuesday,
11:00 am to 1:00 pm
Contact: Debbie Holt,
Tel: 757.737.1379, debzhi@aol.com
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Washington
Yakima
Hope 4 Pain
Phone Support
Contact: Carol,
Tel: 509.823.4443, beaglebabe@charter.net
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West Virginia
Barboursville
Contact: Deb Noble, Tel: 301-641-8092
deweynobleii@yahoo.com
Clarksburg
New Group
Contact: Debbie,
Tel: 304.641.8092
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Wisconsin
Greenbay
RSDS Hope of Wisconsin, Inc., of Greenbay
Meets 2nd Monday
St. Vincents Hospital
Also meets in Saukville
Contact: Orvel Howard,
Tel: 920.437.9197, rsdshope@sbcglobal.net
Greendale
Phone support only
Contact: Beverly Kitzke,
Tel: 414.421.4536
Port Washington
New Group
Contact: Kathy Buck, Tel: 414-520-7287, kathybuck@wi.rr.com
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Wyoming
There are currently no support groups in Wyoming.
Check surrounding states for support groups: Colorado, Idaho, Montana, Nebraska, South Dakota, Utah
Find an online support group here.
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Puerto Rico
Grupo de apoyo Puerto Rico RSD/CRPS
Contact: Mariamgelis Rivera (Tel: 787.597.2590, Facebook) and Jeanette Rodriguez (Tel: 787.309.3937, Facebook), www.puertoricorsd.blogspot.com, Facebook Group (Grupo de apoyo Puerto Rico RSD/CRPS), Twitter, Firstgiving.com
Adviser on Public Relations for Patients in Puerto Rico and APF Leader Action Network Puerto Rico helping to promote Awareness. If you want advice, help to be part of a support group, or to create one in your area, contact me.
Contact: Yazmin Michelle, Tel: 787.617.0333, puertoricochallengersd@live.com, Facebook Group (Puerto Rico Challenge RSD/CRPS), Twitter, Facebook/Yazmin Michelle, Firstgiving
Volunteer support member of www.fundacionfer.org, organization organized by a rheumatologist to help people in pain.
International
Scotland
Dundee
New support group open to anyone with CRPS or who knows someone with CRPS
For more information on meetings visit their website: www.livingwithcrps.org
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